On October 9, the ALS Liga will present the SOS ALS Fundraiser in the Brabanthal in Leuven to increase awareness about ALS and raise funds for research, for the support of the ALS Liga and the construction of the first ALS Care Center. Chef Piet Huysentruyt and actresses Leah Thys and Marleen Merckx will be hosting the Event. I took the initiative for this fundraiser because my mother had ALS.
The ALS Event will start at 6pm with an exclusive dinner prepared by Piet Huysentruyt and top caterer Carpe Diem. After the dinner, auction and raffle, the Event will be opened up for a wider audience with a performance by Kate Ryan, Clouseau (acoustical) and Leki. To close out the evening, an after party is hosted by dj Buscemi, Peter Van de Veire (MNM) and Peter Verhulst (Radio 2).
The City of Leuven supports the SOS ALS Benefit together with the KULeuven (Faculty of Business and Economics and UZ Leuven (University Hospital Leuven)), Province Vlaams-Brabant, Rosy Blue, AB Inbev, De Lijn, Netlog, CM, Sabam, Ad Bibendum, Nationale Loterij, Skil and Free Record Shop.
ALS, commonly known as Lou Gehrig’s Disease, attacks and kills the nerve cells which control muscle movement (motor neurons). Over time, people with ALS lose the ability to move, to speak, to swallow and finally to breathe. Patients in the later stages of the Disease are completely paralyzed; yet their minds are generally not impaired and often remain sharp despite the progressive degenerating condition of the body. The disease is terminal, typically within three to five years. The cause is still not known and to date no cure has been found. The ALS Liga educates patients, family members, and third parties about the disease, it offers psycho-social support and free aids such as wheelchairs and communication devices for speech generation. The Liga also has a research fund focused on finding the cause of ALS and to increase the chances of finding a cure to this unforgiving disease.
Many organizations, governmental bodies and companies (AB InBev, CM, Rosy Blue, Deloitte, the President of the European Union, Mr. Herman Van Rompuy, the Mayor of Leuven, Mr. Louis Tobback, the Ambassador of Belgium in The Netherlands, Mr. Luc Carbonez, Prof. Wim Robberecht of UZLeuven and many others) will be in attendance that evening.
Tickets for the exclusive dinner and for the concert are for sale on our website http://www.alsliga.be/index.php?id=1079 .